SSSA 2010
Conference
July 9 - July 11, 2010
Arlington, Texas
Sheraton Hotel
Arlington, Texas will be the proud host city of the SSSA Conference in 2010.
Sotos Gene Discovered
Our esteemed Medical Advisory Board offers their coordinated point of view to help us understand what this means for all of us. The goal of this letter is to inform parents, provide perspective and look to the future.
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Books, Article, and Brochures
How to Order, "Sotos Syndrome: A Handbook for Families"
Now available in English and Spanish!
by Rebecca Rae Anderson, J.D.; M.S., Bruce A. Buehler, M.D., G. Bradley Schaefer, M.D.
This 55-page soft-bound booklet includes:
A Description of the Syndrome
- The Newborn Period
- Infants and Toddlers
- Young Children
- Adulthood
- Differential Diagnoses
- Genes and Heredity
- The Role of the Schools
- Community Resources
- Siblings and Families
- The Wider Community
- Coming to Terms
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Medical and Developmental Evaluations
- Genetics
- Central Nervous System
- Internal Organs
- Muscle
- Skeletal System
- Endocrine
- Hearing
- Speech and Language
- Eyes and Vision
- Development and Intelligence
- Behavioral and Psychiatric
- Glossary of terms used
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To order your copies of, "Sotos Syndrome: A Handbook for Families":
Please allow 4-8 weeks for delivery.
Please complete this form and mail it to:
Sotos Syndrome Support Association
P.O. Box 4626
Wheaton, IL 60189
OR
Make payments with PayPal - it's fast, free and secure!.
English Version:
Spanish Version:
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