SSSA 2010
Conference

July 9 - July 11, 2010
Arlington, Texas
Sheraton Hotel

Conference Overview

Learn, Network and Bond!

The Sotos Syndrome Support Association holds a conference one weekend every summer. Activities take place from Friday evening through Sunday afternoon.

Families and professionals come from all over the world to learn, network and bond with one another. We combine a program of speakers with social events for the whole family to educate and inspire families on their journey with Sotos Syndrome.

Get Medical Information Directly From the Experts

Dr. G. Bradley Schaefer (USA), Dr. Trevor Cole (United Kingdom) and Ms. Rebecca Anderson (USA) are three of the the world's leading authorities on Sotos Syndrome and other overgrowth disorders. They attend the conference every year giving very popular lectures on the most up-to-date information about Sotos Syndrome.

Free Private Medical Appointment

Every family at the conference is given a private individual exam and consultation with one of the expert doctors. The exams are non-intrusive and free of charge to all attendees. Returning families have their appointments on Friday afternoon. Families attending the conference for the first time have their appointments on Sunday afternoon.

Friday Evening Dinner and Entertainment

The conference begins on Friday evening with dinner and entertainment for the whole family. For many families, this is the first time they have ever met another person with Sotos Syndrome and it can be a huge relief to finally see that they are not alone. We make the evening relaxed and fun for all ages to allow families to get aquainted and renew friendships.

 
During the Friday evening social, silent auction items will be on display for all to bid upon. Our silent auction features items and services donated by our member families and friends of the SSSA. Proceeds from the silent auction are used to sustain the Carol Richey Conference Assistance Fund which provides assistance to families in need of financial aid to attend their first conference.

Saturday and Sunday Workshops

Adults spend Saturday morning and afternoon and Sunday morning attending a variety of workshops. In addition to the Sotos Syndrome expert doctors, we also assemble a variety of local speakers on topics of interest to families dealing with Sotos Syndrome. We always aim to have two tracks of speakers with one track aimed at issues with younger children and a second track aimed at issues for older children or adults.

Sample topics from over the years include:

• Sotos 101: Overview of Sotos Syndrome
• Early Childhood Intervention and Inclusion
• Speech Therapy
• Occupational Therapy
• IEP/IPP Management
• Celebraing Your Child's Strengths
• Sexuality: It's (Never) Too Soon
• Will and Estate Planning
• Choosing a College