Sotos Syndrome Support Association (SSSA)

Organized in 1988, the Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States and the world.

Meet Our Organization

The volunteers that created the SSSA and continue to run the organization have always been family and friends of individuals effected by Sotos or similar syndromes. To further its mission, the SSSA provides a number of program services supported by member dues and individuals’ donations.

Our Mission is to provide a social support environment for professionals and families of individuals affected by Sotos syndrome so they can meet, exchange ideas and help one another cope with the condition.

We invite you to become a member

for just $40 a year

As a member you will receive our monthly email newsletter, SSSA Notes and access to the Members Only portion of this web site. Each month the newsletter contains members’ personal stories, tips and advice as well as announcements of conferences and seminars. The Members Only portion of our web site contains a roster of contact information of all active members, a photo gallery, access to our advisory board of professionals and archives of past newsletters.